For help contact: National Dementia Helpline 1800 100 500 

The DCRC has several programs of activity aimed at improving quality of life for people with dementia living with dementia, and supporting home based carers

 

Some featured DCRC activities, programs and projects focusing on Living with Dementia  ....


Here is a list of key DCRC projects on topic areas connected to "Living With Dementia".  Many of these activities have been led by teams in the DCRC network linked to QuT (Carers and Consumers). To search the full database of DCRC projects, including including historical and completed projects, please use the search tools at top left of this page

PROJECT NAME
(listed alphabetically)

TEAM LEAD

CONTACT DCRC

 

A grounded theory study of the experiences of people newly diagnosed with dementia to inform person centred planning in dementia care

 

QUT

A Review of Community Care

A/Prof Lee-Fay Low
Prof Henry Brodaty
Ms Fleur Harrison

UNSW

A survey of dementia in veterans and non-veterans

Prof Elizabeth Beattie
Dr Catherine Travers

QUT

A systematic review of interventions for family carers of people with dementia

Dr Siobhan O'Dwyer
Prof Wendy Moyle
D. Le Leo

QUT

A trial of the Home Independence Program targeted for people living with dementia (HIP-D): Improving quality of life

Prof Gill Lewin
A/Prof Barbara Horner
Ms Sarah White
Prof Elizabeth Beattie

QUT

Acculturation and Depression in Older Migrants in Australia

Mr Tze Wei Chan
A/Prof Lee-Fay Low
Dr Jess Baker

UNSW

Additional BPSD Guide resources for different end-users: clinicians and families

BPSD Team 
Prof Henry Brodaty
Ms Kim Burns
Dr Ranmalie Jayasinha

UNSW

APLAWD: About People Living Alone with Dementia

Dr Jenny Fletcher
A/Prof Lee-Fay Low
Prof Henry Brodaty
Professor Yun-Hee Jeon

UNSW

Assessing Alzheimer’s disease risk online: What is the relationship between risk factors and objective and subjective memory performance?

Dr Maree Farrow
Prof Kaarin Anstey
A/Prof Kathryn Ellis

ANU

Assessment of Depression for Quality Care Study (ADEQUACIES)

Professor Yun-Hee Jeon
A/Prof Lee-Fay Low
Prof Lynn Chenoweth
Prof Daniel O'Connor
Prof Henry Brodaty
Prof Elizabeth Beattie

UNSW

Beyond respite: designing effective wellness programs for caregivers

A/Prof Christopher Poulos
Prof Elizabeth Beattie
Ms Meredith Gresham

QUT

Cancer treatment and cancer as risk factors for neurocognitive impairment

Prof Kaarin Anstey
Dr Nicolas Cherbuin
Prof Perminder Sachdev

ANU

Caregivers' experience of the decision-making process for placing a person with dementia into a nursing home: comparing caregivers from Chinese ethnic minority with those from English speaking backgrounds

A/Prof Lee-Fay Low

UNSW

Carer coaching program for families living with dementia

Prof Lynn Chenoweth
Professor Yun-Hee Jeon
Prof Jane Stein-Parbury
Ms Matilda Freeman
Ms Vicky Weeden

UNSW

Carers and Partnering with GPs

A/Prof Christopher Poulos
Prof Elizabeth Beattie
Prof Dimity Pond
Ms Meredith Gresham

QUT

Carers' perceptions of the role of Extended Aged Care at Home - Dementia Packages

Ms Kirsten Moore

UNSW

Carers' strategies for caring for people with dementia who wander

Prof Elizabeth Beattie
Ms Margaret MacAndrew

QUT

CareToons - An online program for carers of people with dementia

Prof Henry Brodaty
A/Prof Lee-Fay Low
Prof Gavin Andrews
Dr Jenny Fletcher
Prof Lindy Clemson
Ms Anne Lunnon
Ms Kathlen Moore

UNSW

Cognitive decline in community dwelling older people

Prof Henry Brodaty
Dr Megan Heffernan

UNSW

Cognitive outcome after stroke

Dr Catherine Dong
Prof Perminder Sachdev

UNSW

Cognitive outcomes in the ageing cannabis user

Dr Adrienne Withall
Prof Brian Draper

UNSW

Cognitive training in older persons with mild cognitive impairment, with and without mood disorders

Dr Alex Bahar-Fuchs
Prof Kaarin Anstey
Dr Nicolas Cherbuin
Prof George Rebok
Prof Linda Clare

ANU

Community Aging in Place: Advancing Better Living for Elders with Cognitive Impairment (CAPABLE-C)

Professor Yun-Hee Jeon
A/Prof Lee-Fay Low
Prof Henry Brodaty

UNSW

Community care for the Elderly: Needs and Service Use Study (CENSUS)

A/Prof Lee-Fay Low
Ms Meredith Gresham
Prof Henry Brodaty
Ms Fleur Harrison

UNSW

Consumer Dementia Research Network (CDRN) - Extension project

Dr Chris Hatherly

QUT

Consumer Dementia Research Network - establishment project

Dr Chris Hatherly
Dr Ellen Skladzien

QUT

Creating a dementia friendly society starting with children (Kids4Dementia)

Dr Jess Baker
A/Prof Belinda Goodenough
A/Prof Lee-Fay Low

UNSW

CuDDler robot

Prof Wendy Moyle
Dr Cindy Jones
Dr Siobhan O'Dwyer
Prof Michael Blumenstein
Prof Vladimir Estivill-Castro

QUT

Dementia with Lewy Bodies: Evaluating carers' experiences

Dr Kathryn Nicholson

QUT

Desirable Outcomes and Characteristics of Community Care (DOCCC) Study

A/Prof Lee-Fay Low
Prof Henry Brodaty
Professor Yun-Hee Jeon
Ms Meredith Gresham
Ms Fiona White

UNSW

Development and evaluation of an online program for carers of people with later stage dementia

A/Prof Lee-Fay Low
Dr Jenny Fletcher

UNSW

Development of an assessment tool to measure person centred care in residential settings (P-CAT)

Prof Rhonda Nay
Dr Deirdre Fetherstonhaugh

QUT

Early intervention in dementia support using a person centred approach

Dr Gillian Stockwell-Smith
Prof Henry Brodaty

UNSW

Empowering and improving the health of dementia carers through enhanced Alzheimer's Australia Dementia Support Group Leader skills

Prof Lynn Chenoweth
Professor Yun-Hee Jeon
A/Prof Victoria Traynor

UNSW

Ensuring a smooth journey: Improving the accessibility of airports for travellers with dementia

Dr Maria O'Reilly
Prof Elizabeth Beattie
Ms Sandra Jeavons

QUT

Everyday decision-making: the experience of people living with dementia

Dr Deirdre Fetherstonhaugh
Prof Rhonda Nay

QUT

Examining perceived stigma in persons with progressive memory loss such as dementia: An Australian study

Prof Elizabeth Beattie
A/Prof Barbara Horner
Prof Wendy Moyle
Mr David Wellman

QUT

Experience of being a carer

A/Prof Barbara Horner
Dr Beatriz Cuesta-Briand
Ms Katrina Fyfe
Ms Ash Osborne
Prof Moyez Jiwa

QUT

Family involvement in care of people with dementia in acute care

Prof Wendy Moyle

QUT

Friendships and social structures: Understanding, assessing and improving social networks for persons living in residential care (FRIEND Study)

Ms Anne-Nicole Casey

UNSW

Going to stay at home project

Prof Henry Brodaty
Dr Megan Heffernan

UNSW

HIP-D Facilitator and Participant Workbook

Prof Gill Lewin
A/Prof Barbara Horner
Prof Elizabeth Beattie
Ms Sarah White

QUT

Improving anxiety assessment and management in people with dementia: Validation of an informant measure and pilot testing of a multi-component behavioural intervention.

Prof Elizabeth Beattie

QUT

Improving Stress and Sleep in Persons with Dementia: A feasibility test of the LASER-AD Intervention

Prof Elizabeth Beattie
Dr Judy McCrow

QUT

Improving support for caregivers of people with dementia from culturally and linguistically diverse backgrounds by strengthening community care services: a randomised controlled trial

Associate Professor Lily Dongxia Xiao
Prof Brian Draper
Dr Anita De Bellis
Ms Helena Kyriazopoulos

UNSW

Indigenous People with Dementia

Prof Lisa Jackson Pulver, Prof GA (Tony) Broe, Dr Simon Chalkley, Hamish Robertson, Rachelle Arkles
Prof Brian Draper

UNSW

Infrequent flyers? Exploring the issue of air travel and dementia from the perspective of people with dementia, their carers, airline staff and airport services.

Dr Maria O'Reilly
Prof Elizabeth Beattie
Ms Nicole Shepherd

QUT

Investigating language changes associated with mild cognitive impairment and dementia in elderly CALD bilinguals

Dr Amanda Miller Amberber
Prof Perminder Sachdev
A/Prof Lee-Fay Low
Dr Nicole Kochan
Prof Brian Draper

UNSW

Knowledge Translation: Pain and dementia: an application to practice: an example

Prof Elizabeth Beattie
Prof Rhonda Nay
Dr Deirdre Fetherstonhaugh
Ms Sharon Wall

QUT

Lifespace and people with dementia - measuring and re-enabling continued community participation

Dr Jacki Liddle
Prof Henry Brodaty
Ms Fleur Harrison

UNSW

Literature review of dementia services in rural and remote settings

Prof Leon Flicker

UNSW

Loneliness: The influence of activity and social engagement on loneliness and quality of life in people with dementia and their carers

Prof Wendy Moyle

QUT

Manuals for Younger Onset Dementia

Dr Adrienne Withall

UNSW

Medication and dementia

Prof Dimity Pond

UNSW

Medication management and dementia in the acute care sector and during care transitions

Prof Gabrielle Cooper
Dr Diane Gibson
Professor Susan Kurrle

UNSW

Participation, Purpose and Performance: A choir intervention for people with dementia

Prof Elizabeth Beattie

QUT

Physical Activity guidelines for older adults with subjective cognitive decline or mild cognitive impairment

Prof Nicola Lautenschlager
Prof Kaarin Anstey
Prof Keith Hill
Prof Dimity Pond
A/Prof Kay Cox
A/Prof Kathryn Ellis
B. Dow

ANU

Pilot and evaluation of 'Coping with care-giving' - an intervention for carers of people living with dementia from culturally and linguistically diverse communities

Dr Desiree Leone
Prof Brian Draper

UNSW

Predictors of complicated grief and health outcomes in family caregivers of people with dementia

Dr Patricia Shuter
Prof Elizabeth Beattie

QUT

PROGRAM: The BPSD Guide - Resource Development, Dissemination and Evaluation

BPSD Team 
Prof Henry Brodaty
Ms Kim Burns
Dr Ranmalie Jayasinha

UNSW

Promoting Healthy Ageing in two at-risk populations: People with Intellectual Disability, and their family carers

Professor Julian Trollor
Elizabeth Evans
Prof Henry Brodaty
Prof Perminder Sachdev

UNSW

Proxy decision-making on behalf of people with dementia: how do surrogates decide?

Dr Deirdre Fetherstonhaugh
Dr Laura Tarzia
Dr. Michael Bauer
Mr Jack Sach

QUT

Psychosocial effects of becoming a carer: Predicting caregiver outcomes such as burden, psychological distress and quality of life

Dr Katrin Seeher
A/Prof Lee-Fay Low
Prof Henry Brodaty

UNSW

Quality care for people with dementia in the community: Testing the efficacy of a communication skills training program for professional community based home care workers

Dr Erin Conway
Prof Helen Chenery

QUT

Residential Placement Transitions: Understanding the Experiences of Carers of People with Dementia

Dr Elaine Fielding
Dr Maria O'Reilly
Prof Elizabeth Beattie
Mr Mitchell McMaster

QUT

Resource for Home Carers

Prof Elizabeth Beattie
Ms Sandra Jeavons
Ms Catherine Wyles

QUT

Respite Care in Dementia: Consumer and Provider Perspectives

Prof Elizabeth Beattie
Ms Meredith Gresham
Dr Elaine Fielding

QUT

Stress and health in spouses of people with early-stage Alzheimer's disease: The effects of a memory training intervention

Ms Linda McAuliffe
Prof Rhonda Nay

QUT

Suicidality and resilience in family and spousal carers of people with dementia

Dr Siobhan O'Dwyer

QUT

Take-up of Aged Care Assessment Team (ACAT) recommendations and approvals for residential respite care by people with dementia and their carers

Dr Phil Anderson

UNSW

Telepresence Robot (Giraffe)

Prof Wendy Moyle

QUT

The Australian Experience and Management of Dementia-related Stigma

Dr Simon Colquhoun
A/Prof Barbara Horner
Prof Wendy Moyle
Prof Elizabeth Beattie

QUT

The INSPIRED Study - Improving Service Provision in Early Onset Dementia

Prof Brian Draper
Dr Adrienne Withall
Professor Julian Trollor
Ms Monica Cations
Ms Fiona White

UNSW

The lifestyle engagement activity program (LEAP) development and pilot

A/Prof Lee-Fay Low
Professor Yun-Hee Jeon
Dr Jess Baker
Dr Jenny Fletcher
Ms Fleur Harrison

UNSW

The Sage-ID Study: The Predictors and Correlates of Cognitive Decline in People with Intellectual Disability: a Questionnaire study

Professor Julian Trollor
Prof Henry Brodaty
Prof Perminder Sachdev

UNSW

The social participation of carers of people with dementia

Dr Deirdre Fetherstonhaugh
Prof Wendy Moyle
Prof Rhonda Nay

QUT

Transitional Care for Patients with Dementia

A/Prof Ashley Kable
Prof Dimity Pond
Prof Lynn Chenoweth
Debjani Das

UNSW

Transitions between home, hospital and residential aged care following an injury related hospitalisation for people with and without dementia

A/Prof Rebecca Mitchell
Dr Lara Harvey
Professor Jacqueline Close
Prof Brian Draper
Dr Diane Gibson
Prof Henry Brodaty

UNSW

What is a good day out? Working towards optimal day centre respite care and ways to measure it.

Dr Elaine Fielding
Prof Elizabeth Beattie
Prof Richard Fleming
A/Prof Belinda Goodenough
Ms Margaret MacAndrew
Dr Maria O'Reilly

QUT