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A grounded theory study of the experiences of people newly diagnosed with dementia to inform person centred planning in dementia care

Sheridan Read
Research Centre DCRC Carers and Consumers
Partner Institution Curtin University School of Nursing & Midwifery
Project Description

There is currently a paucity of literature on the personal experiences and expectations of people newly diagnosed with dementia and as a consequence we do not know how to accurately reflect their views in current support and services that are provided.

The available literature suggests that people with dementia feel services are not responsive to their needs and that more needs to be done to actively involve them in service planning and delivery.

This study will identify the common shared concerns of participants newly diagnosed with dementia and the strategies they and their families use to manage the concerns as they move through their dementia journey.

The study will expose new knowledge linking the experiences of people with dementia and how that relates to their expectations for the future.

For more information or if you wish to partcipate, click on the link below:

Recruitment and data collection: February 2014-June 2016

Study/Recruiting contact details - Sheridan Read:


Permission to conduct the study has been obtained from Curtin University’s Human Research Ethics Committee
This project is not funded by the Dementia Collaborative Research Centres.
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