measuring dementia outcomes


To suggest a study for consideration for inclusion in this collection, or to provide information updates, please contact:

Sarang Kim (DCRC-EDP), email: This email address is being protected from spambots. You need JavaScript enabled to view it.

(last information update: October 30th 2013)


Criteria for study inclusion

Within Australia, several groups now have longitudinal studies that follow individuals to examine either the development of AD, MCI and the progression of these disorders.The purpose of the Australian Dementia Study Database Project is to collate information on cohort studies that follow samples for dementia or cognitive impairment, to facilitate collaboration among Australian researchers.  To be included in this list, the following criteria must be satisfied.

  • Australian study
  • Longitudinal study
  • Data collection status (either completed or ongoing)
  • Dementia/cognition as an outcome measure
  • Dementia assessment using research criteria or cognitive assessment including dementia screening instruments and cognitive tests.



Glossary for abbreviations:


AD: Alzheimer’s disease

MCI: Mild cognitive impairment

VaD: Vascular Dementia

FTD: Frontotemporal Dementia

DLB: Dementia with Lewy bodies


Outcome Measures:

MMSE: Mini mental state examination
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CDR: Clinical Dementia Rating

GPCOG: The General Practitioner assessment of Cognition 
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IQCODE: Informant Questionnaire on Cognitive Decline in the Elderly
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TICS: Telephone Interview for Cognitive Status

ARCS: Audio Recorded Cognitive Screen

mKICA: modified Kimberley Indigenous Cognitive Assessment
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RUDAS: The Rawland Universal Dementia Assessment Scale
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ADL: Activities of Daily Living

IADL: Instrumental Activities of Daily Living
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MRI: Magnetic resonance imaging



CSIRO: The Commonwealth Scientific and Industrial Research Organisation

ARC: Australian Research Council

NHMRC: National Health and Medical Research Council





measuring dementia outcomes